Friday, April 17, 2015


I will be adding to this post.

To me, it is just as important when debunking quack claims, to offer people reputable sources, for reputable information.

Celiac/coeliac is not a modern disease - and that's been known for a very long time!

"Gluten sensitivity as a neurological illness" 2002, bolding added by me 
"Aretaeus the Cappadocian, one of the most distinguished ancient Greek doctors of the first century AD..“on the coeliac diathesis”, was the first description of coeliac disease ... Aretaeus' books were first published in Latin in 1500 ... Coeliac disease ... remained obscure until 1887 when Samuel Gee gave a lecture entitled On the coeliac affection ... Hospital for Sick Children ... London ... he acknowledged Areteaus' contribution and went on to give an accurate description of CD based on his own clinical observations." Also spelled celiac.

"New Study Finds that Many Probiotics Are Contaminated with Traces of Gluten", 2015, color and bolding added by me

"these findings raise troubling questions ...“Why is there any gluten in these products? Why should the consumer pay any attention to gluten-free labeling on such products? ... will regulatory bodies take action to protect the public?”"

"Many Probiotics Contain Traces of Gluten, Study Says", 2015, color and bolding added by me

"Dr. Peter Green, professor of medicine and director of the Celiac Disease Center. “We found previously that about 25% of celiac patients use supplements or non-traditional medical products ... people [who used probiotics] had more symptoms compared to people who weren’t taking these supplements”"

The study discussed above 

"108 Widespread Contamination of Probiotics With Gluten, Detected by Liquid Chromatography-Mass Spectrometry", 2015

"Do Not Disturb: Probiotics Aren't There Yet" by Peter H.R. Green, MD (the same Dr. Peter Green quoted about the study above), 2015, color and bolding added by me, @AmerGastroAssn
"Studies have used probiotics in patients with ... and celiac disease. No doubt these specific probiotic samples were supplied by the manufacturer. One also wonders whether the probiotics available to consumers are of the same standard as those supplied to the investigators. ... only five of the 22 probiotics we purchased in our study had an advisory that they should be refrigerated. ... raises further questions about the viability of the organisms in the capsules that are supplied to the consumer. What is the shelf life? Does refrigeration make a difference? At what rate does viability decline and does this matter, as dead microorganisms may convey some health benefit? ... are we there as yet with our currently available probiotic products? I do not think so. With the questions raised above, I wonder whether we should be advising the use of products that we know so little about, including their manufacturing processes and efficacy. They are not regulated like the other medications we prescribe ... maybe we should be advising patients to avoid them."

"Gluten-Free Certification Organization (GFCO)", 2015, color added by me

"Does gluten-free certification guarantee that a product is gluten-free? ... mark assures that the finished product contains 10-ppm or less gluten ... No testing method is available that measures to zero."

ANY cosmetics company that claims "tested 100% gluten-free" products is NOT being truthful since such testing doesn't exist yet!

ANY cosmetics company that uses scare tactics, and or misleading, confusing labeling to sell their products is to me, disreputable period!

"Think You’re Sensitive to Gluten? Think Again", 2015, bolding added by me, @usnews 
"86 percent of individuals who believed they were gluten sensitive could tolerate it"

The study discussed above
"Non-Celiac Gluten Sensitivity among Patients Perceiving Gluten-Related Symptoms.", 2015
"Eighty six percent of patients reporting gluten-related symptoms have neither NCGS, nor CD, nor WA. Self-perceived gluten-related symptoms are rarely indicative of the presence of NCGS" 

"Obsessive-compulsive disorder", updated 2016, color and bolding added by me, @medlineplus 

"Doctors do not know the exact cause of OCD. Factors that may play a role include head injury, infections, and abnormal function in certain areas of the brain. Genes (family history) seems to play a strong role. OCD is treated using a combination of medication and behavioral therapy. ... Medicines used include antidepressants, antipsychotics, and mood stabilizers. ... Talk therapy (cognitive behavioral therapy; CBT) has been shown to be effective for this disorder." 

Still unknown causes make this a ripe disorder for quackery and in fact - it is - which makes quack "remedies" for the causes of it e.g. "detox health food cleanses" which ARE scams - FRAUD upon FRAUD! 
Please see this blog post for detox scams

"Obsessive-Compulsive Disorder (OCD): Causes, Symptoms and Treatments", 2015, some bolding added by me, @mnt
"exact cause has not been identified ... Abnormalities, or an imbalance in the neurotransmitters, or brain chemicals, including serotonin, dopamine or glutamine are thought to be involved in OCD." Regarding the last sentence = UNPROVEN

"CELIAC DISEASE AND MENTAL HEALTH: ANXIETY", 2015, bolding added by me, @CeliacAwareness   

"researchers are beginning to recognize ... association between celiac disease and anxiety, more research is needed to fully understand the relationship between these two conditions."

"Factors linked to development of celiac disease identified", 2015, color and bolding added by me, @medical_xpress
"celiac disease in children is significantly associated with sex of the child, maternal celiac disease, and type 1 diabetes "

"Gluten and Food Labeling: FDA's Regulation of 'Gluten-Free' Claims" updated, 2015

"7 Myths and Facts about Celiac Disease", 2014, @nationwidekids
" Myth 5: Kids with celiac disease have to use gluten free soap, shampoo and lotion. 
Fact: Gluten cannot be absorbed through the skin, but parents need to be aware of hygiene products that are easily ingestible, especially when bathing younger children." 

"Action Alert: Notifying the FDA about Misbranded Gluten-Free Products" | Gluten Free Watchdog, 2014
"Foods Labeled Gluten-Free Must Now be in Compliance with the FDA Gluten-Free Labeling Rule" | Gluten Free Watchdog, 2014

"Are gluten-free standards too strict for manufacturers?" | Food Magazine:, 2014, bolding added by me 
"Thirty years ago ... threshold sensitivity for gluten testing ... as high as 200ppm ...Ten years that ... dropped to 30ppm. Five years ago it ,,, dropped to 10ppm. Nowadays it’s around 3ppm ... Australian analytical laboratories are looking at new test methods that are around 10 times more sensitive ... Improvements in gluten detection means that a food which was gluten-free five years ago may not be gluten-free today, and a food that is gluten-free today may not be gluten-free next year."

"What Is Gluten-Free? Foods With Gluten-Free Label Still May Contain Some Gluten", 2014, bolding added by me, @aboutcomhealth
"Current testing technology can detect gluten down to about 3ppm ... some specialty manufacturers produce products with less than 5ppm of gluten in them ... if you're sensitive to lower levels of gluten, you may react to products tested to have less than 5ppm of gluten in them."

"Gluten-free skin and beauty products: Extracting cash from the gullible", 2014, @ScienceBasedMed
"overblown claims for “going gluten-free,” and ridiculous products such as gluten-free skin care products"

"Should Your Children Avoid Gluten?", 2013, @nationwidekids

"gluten free diet does have potential deficiencies including fiber, calcium and other vitamins and minerals ... If your child is having any symptoms that make you suspicious that he or she may have celiac disease ... important to talk with your pediatrician. If your pediatrician has your child tested and it is it found that they have celiac disease, or if they think your child would benefit from a gluten free diet, work with him or her to find alternative sources of these nutrients to supplement their diets."
Author information

"Cosmetic Labelling Regulations", 2013 
"To date, we have been unable to find any toothpaste that contains gluten."

Therein lies the "rub" (quandary) to quote Shakespeare. If a manufacturer is claiming gluten-free for certain products, can that claim be trusted? If you have celiac disease, or young children who do, it is best to consult with your medically qualified specialist for recommendations.

See also, 2015